About the Myotubular Trust

People behind the Trust


Communications and Education Coordinator:

Melanie Spring

Melanie Spring has been with the Myotubular Trust since November 2008, and is the first point of contact for families, the medical community and researchers.




Our Scientific Advisors:

Our Founding Patron:

Professor Victor Dubowitz
Emeritus Professor of Paediatrics, Imperial College, London
President of World Muscle Society
Founding Editor of Neuromuscular Journal

Our Scientific Advisor:

Professor Francesco Muntoni
Professor of Paediatric Neurology, University College, London
Head of Dubowitz Neuromuscular Centre, Institute of Child Health,
Great Ormond Street Hospital for Children, London

Professors Dubowitz and Muntoni are based at one of the largest Paediatric Neuromuscular Units in Europe which has been designated by the Dept of Health as a National Reference Centre in the UK for a series of congenital neuromuscular conditions.

The Trustees:

Mr Andrew Lennox

Mrs Anne Lennox
(chief executive
and parent trustee)

Mr James Rosling (treasurer)

Mr Gary Browning

Mrs Patricia Allen
Mrs Carol Seville
(parent trustee)
Mr Gregory Fowler
(parent trustee)

Our dedicated Trustees each provide their time and expertise on an entirely voluntary basis.



Mrs Wendy Hughes
co-founder and
trustee (2006-2011)

The Trustees would like to thank Ian Hunter for his immense help during set up of the charity and three years to April 2009. We would also like to thank Wendy Hughes for her dedication and work to set up the Myotubular Trust with Anne Lennox, and as a parent trustee to April 2011. Wendy is still involved in Myotubular Trust projects on a voluntary basis, around caring for her affected son, Zak.