Family Stories - Ingo

Family stories from the Myotubular Trust

Family stories from the Myotubular Trust

Family stories from the Myotubular Trust

 

 

Our son, Ingo Thomas Knippenburg, was born in the Netherlands on September 23rd 2004.

He was a very gentle, bright and trusting boy, with the most beautiful blue eyes and the sweetest smile. He sadly passed away on February 9th, 2005 aged only 4 and a half months, after a severe pneumonia which is a complication of Myotubular Myopathy.

 

 

 

.Family stories from the Myotubular Trust