The Myotubular Trust is delighted to be receiving sponsorship in 2016/17 from Christie & Co, the UK’s largest business sales specialist. Since the charity was set up in 2006, Christie & Co has supported our work with donations, t-shirt sponsorship, attending flagship fundraising events and sending out our charity cards, to name a few.
A team of 23 staff from Leeds, Manchester and Newcastle upon Tyne offices are taking on the Yorkshire Three Peaks Challenge in June. Some of them took part in a practice climb of one of the peaks.
We’re are so glad that the sun shone for you and that it all went well. We wish you all the very best of luck with the remainder of your training and with the event itself. Thank you!
In the spirit of Easter & Spring, full advantage was taken of the birth of Exeter based Anthony’s flock of Wensleydale sheep which had their first two sets of twins; three ram lambs and one ewe.
In return for a donation, names for the new-borns were put into the proverbial hat and Anthony drew out a name for each of the lambs - winners each received a bottle of wine.
There was no shortage of creativity amongst the entries – suggestions included Sheepy McSheepface, Lady Baa Baa, Jean Claude Van Ramme and Wool. I. Am.
Thanks to the organisers and to all who took part and congratulations to the winners.
Tup-perware, Yum!, Rambo and Roger, we hope you and Anthony like your new names….
In the South West Region the fundraising drive was kicked off with an Easter Raffle with a selection of nine prizes to be won.
The raffle was a huge success and was drawn on Friday 7 April 2017 by Zak Hughes – who has myotubular myopathy - in the Exeter office.
Many thanks to Robyn and Jo for organising the raffle and to all who brought tickets. We hope the lucky winners enjoyed their prizes.
We are hugely grateful to Julie Kitson in Newcastle Upon Tyne for completing the Vesta Head of the river challenge on the River Thames, in a crew of 8 women.
Christie Finance kindly organised a Charity Raffle in support of the Trust, with a superb prize - a box of 15 international beers & ales, produced by Independent Breweries.
Feeling Festive in the North ….The Leeds, Newcastle & Manchester offices of Christie & Co got into the Christmas spirit by celebrating Christmas Jumper Day.
We are so grateful to our friends Christie & Co London for donning a fantastic array of Christmas jumpers as part of their fundraising for the Trust.
Maria Isabel Diez, who is the senior receptionist and the organiser of this very successful event, told us, “ I am so happy today - it's been a successful Christmas Jumper Day at the office :) Seeing everyone wearing their Christmas jumper for such a loving cause is an amazing feeling. I feel very grateful to be able to help and today was a clear example that together we can do so much!"
In keeping with the Christmas theme, the team in London have also been selling the Christmas cards designed by those affected by myotubular and centronuclear myopathy, and making donations in return for some tasty home baked goodies.
Our thanks go to Maria and her colleagues for their wonderful support – we hope you all enjoyed the day.
We are delighted that in our tenth year that the Company has formally adopted us to help us continue our aim of finding a cure or treatment for all forms of myotubular myopathy. Christie + Co has already made a flying start since announcing the sponsorship in July, with t-shirt sponsorship once again and encouraging everyone at Christie & Co to organise their own individual fundraising activities which will be promoted and featured in their staff newsletters.
David Rugg, Chairman of Christie & Co said "Other than Christie & Co's obvious connection with Zak who has x-linked myotubular myopathy and who is the son of one of our colleagues, the one other point was that the Trust was an opportunity we felt to make a real difference to a group that nothing else was being done for in the UK.
Zak, the Founders and Trustees are so very grateful to everyone at Christie & Co for their generosity and support to make a real difference for our group of conditions known as Myotubular Myopathy. Their corporate friendship and recognition is really heart-warming and gives so much hope for our global community who are affected by this rare and devastating condition.
To find out more about the work of the Trust and how your help makes a difference, please watch our film - http://www.myotubulartrust.com/2016-film.htm
Two of our families’ boys, William and Zak, wearing Christie & Co sponsored t-shirts