10 kilometres, 10 bridges London Hope Walk - Saturday 20th May 2017

We had a great turn out for the 10k, 10 Bridges London Hope Walk – we were joined by over 70 walkers, and four myotubular / centronuclear families.  It was a particularly special day and the weather was very kind to us.
Yet again, we have raised a wonderful amount in sponsorship, every penny of which will be used to fund world class research for myotubular and centronuclear myopathy. If you would still like to donate, it’s not too late - https://mydonate.bt.com/events/2017londonhopewalk
We are so grateful to Chrysoulla Kyprianou for taking the photos. They really are beautiful and capture the warmth of both the people and the weather.  

Chrysoulla now has her own photography business which we thoroughly recommend - https://www.chrysoulla.photography 
Special thanks also to those who had the picnic reading and waiting for us in Battersea Park - Katie Hyman, Andy Wilson-Smith and Lynn Alleway.

And finally, massive thanks to Bhawana and Kapil for surprising us at the finish line by bringing along their gorgeous one year old son, Arnabh, who has myotubular myopathy. What a treat for us all!

Click here to view the full photo album

Read the story and history of these 10 iconic London bridges here.

2016 - The Myotubular Trust 10 year celebration.

A 10 mile sponsored walk over 10 of London’s most iconic bridges.

147 people.

Seven families with myotubular or centronuclear myopathy with us.

Walkers flew in from Germany, Australia, Holland and Italy…some just for 24 hours!

And over £30,000 raised for research.

What a great, great day. Thank you to everyone who joined us on the day, and thank you the fantastic fundraising.

Thanks to James Rosling and Chrysoulla Kyrprianou for the photography.

Thanks to the London black cab driver, Mr Tony O’Brien, wherever you are, for refusing to take payment for your fare when the photographers jumped in your cab!

Click here to view full photo album

See a potted history of those 10 London bridges here

Please continue to join the Myotubular Trust on their journey to fund world class research for myotubular and centronuclear myopathy.

You can still donate to the 10 Years, 10 Miles, 10 Bridges campaign here


8th London Hope Walk

Over 60 walkers took part in the eighth London Hope Walk along the Thames Towpath from Hampton Court to Wandsworth. We were delighted to be joined by some very young walkers and even one dog this year who took part with their parents for the final 5 miles from Barnes.

It was also fantastic to have so many teenagers with us from Alleyn’s School and also our team from Capgemini who have supported this event year in year out.

Our team of supporters who manned pit stops, erected a gazebo in the park and took photos were as wonderful as ever.

Thank you to everybody who supported this event and made it possible. And a massive thank you to whoever arranged the perfect weather!

Click here to view our full photo album!

What another great day the 2014 Hope Walk was!







See the 2014 London Hope Walk album here:





See the 2013 photo album:



The first ever Myotubular Trust 20 mile Thames Walk was arranged by three of our wonderful supporters, Lizzie, Jo and Laura, in 2008, as they really wanted to make a difference.

‘We became involved when one of the girls in our NCT class, Anne Lennox, had a baby boy called Tom, born with Myotubular Myopathy. Sadly after bravely fighting the condition for almost 4 years Tom died in May 2007. It is great to think that we are doing something so positive to remember him by and to support other families with children with myotubular myopathy.’

Lizzie, Jo and Laura


The 2015 London Hope Walk route

1. Map, 1

2. Map, 2

3. Directions 1

4. Directions 2