"It takes enthusiastic people to bring things ahead of schedule" Professor F Muntoni
It is only with your help that we have been able to fund many scientific research projects to find a treatment or cure for myotubular myopathy.
Here you will find all the information you need to design your own fundraising event for the Myotubular Trust.
Now, has never been a more important time to keep donating and fundraising. Thank you.
Devise your own challenge, join an organized sporting event, perhaps do something daring and out of the ordinary, in return for individual or company sponsorship.
These types of events give people something for their money. For people who have already supported a sponsored event, it gives them a chance to contribute in a different manner. For examples of other successful Myotubular Trust events, see fundraising guidelines or Past Events on our website, but our top tips are:
You can never underestimate how much it means to be thanked, and especially thanked individually. Any sponsors will be automatically thanked if they sponsor you online through bmycharity. But we also have free e-cards (specially designed for us courtesy of www.Jimpix.co.uk) for you to email to thank individual sponsors. If you would like us to acknowledge particular sponsors, your colleagues or employers, for example, please do ask and we will be pleased to write to them or acknowledge their help on our website.
Ask us for a Myotubular Trust t-shirt*.
Ask us for Myotubular Trust posters and stickers.
Ask us to advertise the event on our website, sending a photo if possible. We always flag up new events as ‘news’ on the front page of our website and link into the fuller story on our website fundraising page.
* T-Shirt stock is limited because they are provided by generous sponsorship
NB: Please ask if you'd like your leaflet or form to feature a particular child.
Feel free to email us anytime at: