Newsletter Signup
  • Home
  • About Us
  • Family Stories
  • How you can help
  • Research
  • Shop
  • Info/Resources
  • Sponsors
  • Contact Us
Newsletters

See other news


Read our Spring 2012 Newsletter

Read our Autumn 2011 Newsletter

 


UK Registered Charity No: 1137177 (formerly 1113809)

Founding Patron: Professor Victor Dubowitz, Emeritus Professor of Paediatrics, Imperial College London; President of World Muscle Society

Scientific Advisor: Professor Francesco Muntoni, Professor of Paediatric Neurology, Imperial College London

Design by Insignia Creative | Hosted by Net Communications

  • english
  • espania
  • deutsch
  • francais
  • romana
  • nederlands