Scoliosis Management

What is Scoliosis?

Scoliosis (derived from the Greek word meaning crooked) is a medical condition in which a person's spine is curved from side to side. Although it is a complex three-dimensional deformity, on an X-ray, viewed from the rear, the spine of an individual with scoliosis may look more like an "S" or a "C" than a straight line.

Scoliosis is typically classified as either congenital (caused by vertebral anomalies present at birth), idiopathic (cause unknown, subclassified as infantile, juvenile, adolescent, or adult, according to when onset occurred), or neuromuscular (having developed as a secondary symptom of another condition, such myotubular and centronuclear myopathy).

About 3 out of every 100 people have some form of scoliosis, though for many people it's not much of a problem. For a small number of people, and sometimes children and young adults with neuromuscular conditions in particular, the curve gets worse as they grow and they may need an operation to correct it. While small curves generally do not cause problems and may not be very noticeable to others, larger curves can cause discomfort and lead to respiratory problems when the lungs become compressed.

 

Read Personal Perspectives on Scoliosis

Webinar on Scoliosis Management, Saturday 3rd December 2011

Myotubular Trust has joined up with USA patient organisations Joshua Frase and Cure CMD to arrange a webinar on Scoliosis to help patients and families with myotubular and centronuclear myopathy and congenital dystrophies.

The webinar included perspectives from eminent surgeons and clinicians in both the US and UK and took place in December 2011.

View the Webinar here: http://youtu.be/ZBK8lo0Fz7M

 

Helpful Documents

See and print Frequently Asked Questions & Answers about Scoliosis (PDF). This includes a glossary of terms.

Respiratory Care Advise For Scoliosis (PDF) for patients with myotubular and centronuclear myopathy and other congenital myopathies. This is based on two papers including the BTS Guidelines for Children with Neuromuscular Weakness, published July 2012.

Please email us at melaniespring@myotubulartrust.org if you would like us to send you a copy.   

              

Other Resources

Scoliosis Association (UK) this is the leading Scoliosis charity in the UK. They offer comprehensive and helpful advice about all aspects of Scoliosis and will even point you in the right direction to find a specialist scoliosis surgeon in your area.

Scoliosis Support Group a helpful and friendly website where you can post your questions to other patients about surgery and non-surgical treatments, and even find out opinions about a treating surgeon or hospital.