This section points you in the direction of other charities, friends and resources for myotubular and centronuclear myopathy, both in the UK and globally.

The first of our patient management topics is on Scoliosis. We are planning to add further care and management topics in this area of our website to provide you with both personal and professional insights into managing the condition.

Myotubular Trust joined up with USA patient organisations Joshua Frase and Cure CMD to arrange a webinar on Scoliosis to help patients and families with myotubular and centronuclear myopathy and congenital dystrophies on Saturday 3rd December 2011.

Full details of the webinar will be posted here when available.

We would like to thank Drs Roye, Bonnemann and Foley for their help and input, and for answering patient questions.

Scoliosis Association (UK) this is the leading Scoliosis charity in the UK. They offer comprehensive and helpful advice about all aspects of Scoliosis and will even point you in the right direction to find a specialist scoliosis surgeon in your area.

Scoliosis Support Group a helpful and friendly website where you can post your questions to other patients about surgery and non-surgical treatments, and even find out opinions about a treating surgeon or hospital.