UK and Global MTM/CNM-Specific Websites:
uK
| The Myotubular Myopathy and Centronuclear Myopathy Information Point | centronuclear.org.uk/theinformationpoint/index.html |
Europe/USA
| Christian Weber's German MTM Website | www.mtmx.de/ |
| The Joshua Frase Foundation | www.joshuafrase.org/ |
| USA MTM and CNM Family Conference 2009 | www.mtm-cnm.com/ |
| Joey Wells Poetry | joeywells.net/ |
| MTM Resource Group | www.mtmrg.org/ |
Neuromuscular Websites From around the World
UK
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Muscular Dystrophy Campaign www.muscular-dystrophy.org/
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Ireland |
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Muscular Dystrophywww.mdi.ie/hy Ireland
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Europe
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Belgium - NEMA www.nema.be/
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Denmark - Muskelsvindsfonden www.rcfm.dk/om-muskelsvind/sygdomsbeskrivelser/kongenit-myopati/myotubular-myopaticentronuclear-myopati/
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Finland - The Finish Neuromuscular Disorders Association www.lihastautiliitto.fi/
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France - AFM www.afm-france.org/afm-english_version/
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Germany - DGM Deutsche Gesellschaft für Muskelkranke e.V www.dgm.org/
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Italy - Unione Italiana Lotta alla Distrofia Muscolare www.uildm.org/
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Netherlands - Vereniging Spierziekten Nederland www.vsn.nl/
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Poland - Stowarzyszenie na Rzecz Dzieci z Zaburzeniami Genetycznymi
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Portugal - APN www.apn.pt/
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Spain - BENE Asociación de Enfermos Neuromusculares de Bizkaia Centro Cívico Bidarte www.asociacionbene.com/
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Switzerland – ASRIM www.asrim.ch/fr-ch/asrim/accueil.html
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Canada and United States
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Canada - Muscular Dystrophy Association of Canada muscle.ca/
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USA - Muscular Dystrophy Association of US www.mda.org/
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Australia
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Muscular Dystrophy Association of Australia www.mda.org.au/
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South Africa
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Muscular Dystrophy Association of South Africa www.mdsa.org.za/
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